Learn, Discover, Understand
Saturday, September 26, 2020 10:00am - 12:00pm
The CPDR Virtual Conference was pre-taped live on September 7th with Covid-19 safety protocols in place. The Q&A portal will be moderated live from 10:00am – 12:00pm on September 26th by our speakers and CPDR staff during the conference broadcast. All patient care questions should be directed to your medical provider.
What is the California Parkinson's Disease Registry?
California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health beginning July 1, 2018. The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease.
Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time. California's large and diverse population makes it ideal for providing important information about this disease.
What is the Parkinson's Disease Registry Conference?
The California Parkinson's Disease Registry is hosting a free virtual conference on Saturday, September 26, 2020 from 10:00am - 12:00pm for the broader Parkinson's Disease Community. Registration is for attendance to the conference only. This is not to sign up for the registry.
Why should you attend?
To learn why California Parkinson's Disease Registry is integral to our understanding of the disease and may lead to improved treatment for Persons with Parkinson's.
Who should attend?
Anyone affected by Parkinson's Disease, Persons with Parkinson's, Care Partners, Medical Professionals, Support and Resource Providers
What is the cost?
The event is free.
What will I learn?
The California Parkinson Disease Registry conference team and guest speakers will share current information about the registry and what comes next. Participation in the registry is likely to increase what we know about the condition, help health care professionals improve treatment, and allow researchers to design better studies on the condition, including development and testing of new treatments. Additionally, this information could lead to increased funding for Parkinson's Disease Research.
Once I register for the conference, then what happens?
Once registered, you will receive an email with further explanation and detailed instructions
on how to watch the conference. We will also be providing an opportunity to
practice watching prior to the conference with support from the conference team.
Educational materials will be mailed to you in advance.
If you are unable to attend, a recorded version of the event will be availalbe at a later date to those that have registered.
About the Partners
CPDR –The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease.
PANC – The Parkinson Association of Northern California is dedicated to enhancing the lives of people with Parkinson's, their families and care partners. We live our motto, "Building Community for the Journey."
Conference Questions: 916-357-6641 or firstname.lastname@example.org
California Parkinson's Disease Registry information:
Email CPDRhelp@cdph.ca.gov or call 916-731-2500, ext. 3